Blow the Taboo out of SUDEP

For people who live with epilepsy and those who care for them, the word SUDEP is the one word that can strike fear into them.

Therefore the most natural reaction when this subject is approached is for them to switch off and shut down taking ignorance as bliss, if this is not acknowledged it will never happen to us!

And as tricky as this subject is we know that SUDEP CAN and DOES happen. So arming yourself with facts, knowledge and tools is key

Epilepsy – Making A Real Difference

“Our daughter Sinead had been experiencing fairly regular epileptic seizures as a result of an acquired brain injury she suffered at 6 weeks old (in addition to other disabilities that resulted from her injury). Despite taking medication, she continued to have seizures without warning through both day and night, which increasingly occurred at night time as she grew older. In my attempts to be there when my daughter needed me, I tried a baby monitor with a camera, but as her seizures weren?t accompanied by noises, the monitor did not wake us up as we?d hoped. We searched unsuccessfully for a long time for a ?gadget? that could help us to keep Sinead safe so it was a massive relief to finally discover that the Companion was out there and could potentially help us!”